Privacy Statement

The privacy of all members who participate in ORANJ BOWL research is taken very seriously and we engage several precautionary measures to protect their privacy and trust.

How Are Data Protected?

Any and all personal or identifying information collected by interviewers from research participants is kept strictly confidential and carefully protected in a secured, password protected computer system maintained by the Information Systems & Technology department of the University of Medicine & Dentistry of New Jersey. These data can only be viewed by the senior management of the ORANJ BOWL research program and they are maintained solely for the purpose of enabling ORANJ BOWL research staff and interviewers to contact participants for research purposes.
Shortly after research information is collected from participants, all identifying information collected is separated from the research interview answers (i.e., “the research data”) they provide. Once separated, research data and identifying information are always stored separately in separate, password protected drive locations on separate computers.

Are Data Ever Shared with Others?

ORANJ BOWL management and staff will never provide the name, contact information, or any other type of personally identifying information of any research participant to any other researcher or any type of commercial, government, or non-profit organization unless, of course, the research participant specifically and expressly instructs us to do so or unless we are ordered to do so by a court of law or a similar legal tribunal with jurisdictional authority to compel us to provide such information. Period.

Data collected from large numbers of ORANJ BOWL research participants may be provided to other researchers for statistical or other scientific analysis. However, identifying information will have been removed from these datasets long before sharing them with researchers, making it virtually impossible for research participants to be linked to their corresponding data. In effect, participation in ORANJ BOWL research is completely anonymous.